What Diabetes Apps Do You Use?

Technology is great! It allows us to keep connected with other people in our lives. For example, It allows my teenager to contact me always. So when he is over at a friends or out with school activities he texts me his blood sugar numbers when they are out of range. So my question is what apps for your smart phones do you use for your type 1 diabetic?

Type 1 Available apps

There are so many apps available for use. Some seem perfect for a type 2 diabetic because  they help with meals and weight loss. The few type 1 diabetic apps I have reviewed and looked at are ManageBGL, My care Connect, and Go Meals or Calorie King. ManageBGL website talks about real-time Blood sugars (a sitter/child enters it and it gets to the parents), predictive lows or highs, ans so much more. What a wonderful way for parents to help easy an overnight with others. Then there is My care Connect. This one allows information from school, child, parent to communicate back and for as well as with the endocrinologist. I have not had the chance to use either one but have look at both closely.

 

Then there is the applications that help you carb count:Calorie King, GO meals. We utilize apps and books. Usually just what we can get our hands on fastest. They have allowed my teenager to feel more comfortable counting carbs.

Pros and Cons

Apps help so much and in so many ways depending on which app you decide to use. Apps need good cell service or wi-fi to get the information live. Don’t get me wrong I utilize every thing I possibly can to help me with my sons diabetes management, but there are times a book or a phone call is easier or more reliable. So a mix of technology and old school paper is good.

Knowing when to tell your child or other adult if the app, phone call or consulting a book, like ours “type 1 Diabetes and Babysitting”, will be the fastest or safest method. We can rely on technology until it does not work then we need to rely on paper. Plus there are things that are tangible like having a flow chart right infornt of you to know management. Let me know which do you prefer: paper or a screen?

Type 1 Diabetic Apps


Symptoms of Type 1 Diabetes

I often had the question: How did you know your son had diabetes? I didn’t. Even as a healthcare provider Type 1 diabetes was not the first thing in my mind. Mostly because I am a mom before I am a nurse practitioner. Quincy did have most of the symptoms when I look back right before diagnosis. And because I am a practitioner I knew something was wrong and I had him into the clinic quickly. He was never in diabetic ketoacidosis upon diagnosis. So As a parent how do you know.

First If you think something is wrong with your child, take your child into your doctor. Nothing you can read here or anywhere else will substitute what a good provider can do when seeing your child and running some lab work.

Secondly the main symptoms of type 1 diabetes (or diabetes in general) is extreme thirst, extreme fatigue (more than you would see with a  growth spurt), extreme hunger but also weight loss, a fruity breath smell or loss of consciousness. The later are later symptoms and are indicative of diabetic ketoacidosis (DKA). DKA is when the body is breaking down large amounts of protein to make fuel and in turn makes the blood more acidic. This can render a person unconscious and without health care death.

If your child has any of the milder symptoms thirst or hunger that cannot be satisfied, fatigue or weight loss then take your child to the doctor. the symptoms could be diabetes or a number of other diagnoses.


Hyperglycemia and type 1 diabetes

Type 1 diabetes comes with many ups and downs. One such is hyperglycemia. Hyperglycemia or high blood sugars. High blood sugars are blood sugars above the range given for a particular child. A high blood sugar usually is defined as 150 mg/dl. If your child is on an insulin pump that number is above 250 mg/dl. Hyperglycemia is an issue when blood sugars run high for a long period of time, typically months. A periodic or a few days of a higher blood sugar is not a sever issue as long as the blood sugar becomes under control.

The symptoms of hyperglycemia are very thirsty, frequent urination, increase in hunger, ketones in urine tested by a ketone strip,and fatigue. Extremely high blood sugars are demonstrated as vomiting, unconscious, fruity smell of the breath, and loss of appetite. Ketones in the urine are made when a person has high blood sugars. Correcting blood sugars with insulin and drinking plenty of fluids will correct ketones and high blood sugars.

Causes for hyperglycemia in children is from a mismatch of insulin and carbohydrates counts. But other reasons are attributed to high blood sugars often due to child’s need for more basal insulin and or the child is growing.

To determine why a child has higher blood sugar it takes persistence to correct and know blood sugars are correctablef.


Type 1 Diabetes and Friends

Friends can be a tricky thing with your type 1 child. Children want so badly to fit in with others, to have a group of people who accept them unconditionally. Type 1 diabetes can make your child have the impression of being unaccepted. Now not all children feel this way. Many children have a self-confidence that is made of iron and other children determine their confidence based on others. And let’s face it: other kids can be mean and use diabetes as a way to pick on and bully your type 1 child.  As parents we want to embrace our children, keep them safe, and have them feel confident no matter what and make all of their ills disappear. If we, as parents, could do that we would wipe out diabetes all together with our wants and desires.

Since we cannot wipe out diabetes, how do we help our children to be comfortable with this lifelong disease?  I believe it depends of your child’s age. With a middle, elementary school and younger child, parents need to enter the classroom each year and talk to the class about type 1 diabetes. Joslin has a great handout to guide you as a parent through this at http://www.joslin.org/info/classroom_presentation_on_diabetes_for_elementary_school_age_children.html   Beyond talking to the class, you can also enlist the help of the friend’s parents. They will need to know about your child anyways so why not have them help talk to their child about childhood diabetes? The friend’s parent may know how to talk to their child about specific for their child.

Then with an older child,  he should start to learn to talk to their friends about Type 1 Diabetes. This will help two-fold. First, it helps your type 1 child learn about their disease a bit more because he or she needs to talk about Type 1. Secondly, I strongly believe that encouraging your child to discuss this makes them more confident about themselves. When a child becomes more confident they are more likely to advocate for themselves. With advocation less childhood bullying could occur. Kids don’t tend to pick on kids that are confident in themselves. Self-advocation is a lifelong habit.

All T1D kids need to eventually be able to discuss how their body works, why they need insulin, to carry sugar, eat often, and sometimes feel cruddy because of their sugars. Teaching your child while they are with you by talking to the classroom and their friend’s parents about type 1 diabetes will enhance your child’s ability to make lifelong habits to talk and discuss about their diabetes.



Type 1 Tween

As a parent caring for a child type 1 diabetic you have likely been living day-to-day with blood sugars, carbohydrate counting, insulin, and then adjusting basal rates and insulin to carbohydrate ratios. (of course this is if your child is not a new diagnosed type 1). Then one day you realized you have a tween. You know the 9/10-13 years of age trying to be a bit more independent from you as a parent. Naturally they need to learn independence slowly. In a tweens life Peers become the ruling influence and  the tween wants to make more of their own decisions. This is only the beginning as your child grows to adulthood. In a non diabetic life there is so much to consider. Diabetes then adds another layer for parents in raising a child to adulthood.

So how do you as a parent help your Type 1 child to navigate this  need for some independence and stay safe with diabetes. As in a non diabetic kids, life and learning and not linear. You give a child room to be independent and then they have a life lesson and have consequences. So how to begin independence and type 1 diabetes? The first thing to do it is to understand where your own child is at with their type 1 diabetes comfort level. Does he or she know how to count carbohydrates and does correctly with insulin? Can he or she give a shot? Are they aware of their blood sugars and able to test? Finally, can you trust your child to do those things and not be caught up in “life”? If you can then begin by trusting them to go to a friend’s house or other youth activities without you.Then do you get a phone or no phone and what age so to promote being able to be more independent, and what age is a phone given? We use a phone because I can parent from afar and my son is able to gain more independence.

I feel any of the above only happens in small steps. What works for one family may not work for another because kids are so different. Each child’s learning can be vastly different, but some basic truths apply to all type 1 children. One such truths is self-care in relation to their diabetes.  If this is satisfactory (able to test blood sugars, how to treat the blood sugar, and when to notify you as a parent) then I believe you let your child should be able to be away from the parent and grow gradually. For example we use our book, “Type 1 Diabetes and Babysitting: A Parent’s Toolkit” for my son to know what to do with his sugars. So when we are at a cross-road he looks up the basic steps and we always review it. If my son needs more training we discuss it with his educator. 

With slow training, I believe your type 1 child will grow to an independent adult. It is all a learning process for us as parents and for our children. In the end as parents we don’t only have the responsibility to prepare them to be adults but to also teach our Type 1 Diabetics how to manage their disease in a healthy way so they are able to without our help as parents. The tween years can be fun and challenging at the same time. Having a clear plan to guide your type 1 child into adulthood will decrease stress for the whole family at this time in their lives. 

 


Grandparents and Type 1 Diabetic Grandkids

Off to grandma and grandpa’s house we go….what goes in the diabetic bag (besides everything)?

The first few times Quincy went to grandma and grandpa’s I was a mess. He was excited! He got to play with grandpa and his flight simulator. Help grandma cook and play board games. The normalcy of childhood. The blessing to be able to find it with family. However, this did not take away my fear.  I wasn’t a mess because I did not trust my in-laws. I did. But WHAT IF always lingered in my head. So we had the house type 1 child proofed. We hung carb counting cheat sheets and hypo cheat sheets in the kitchen cabinet. Quincy had his own supplies at their house, 4 ounce juices, easy to eat and will eat snacks, favorite foods, a glucometer, syringes. We even kept insulin there at times.  All this to go down the street and to keep him safe.

Of course he did fine. Me on the other hand slept with my cell phone (now to have a type 1 and no cell phone…scary thought!). He had fun! He had a “normal” time with grandparents that love him and would sacrifice everything for him. His time with grandma and grandpa gave him memories that will stay with him forever.  Funny how flying a plane on the computer and hanging out with some of your favorite people erases diabetic stresses for a child. I look back and the work was worth it. Yet, getting there could have been easier (at least hind sight).  Now he goes out and about as a teenager with out much thought in preparing.

Even so my three ringed binder was always in the bag or on the counter (and still is). Everything was there, Doctors numbers, my number (like family would forget that!), what to do with lows or highs, calculations when he was on shots, You name it or we got it from the doctor or educator, it was in the book! Seems a little overboard now. But then I had no other answers on the how to. How do I make it easier for my son (who did not understand it fully) and how to make it easier for my in laws? Hopefully our book makes it easier for grandparents and extended family everywhere to get through that special time with their type 1 grandchild.

What is your story about extended family. Who has taken classes and done the work to care for your type 1 kiddo? What memories did you make with that family member with your type 1 child recently or in the past? How is that loved ones house type 1 child proofed?