Type 1 Diabetes and Growth Spurts

Growing children seem to eat parents out of house and home. There is never enough food for them! For example, my type 1 13-year-old is eating me out of house and home! And the result is a three-inch growth spurt about every three months. The problem (beyond the obvious sugar control!) is that he wants to eat all day long. Waiting until the next meal might as well be giving him a “death sentence”. The recommendations we received was to eat every two hours. He is able to have an entire meal every two hours. I thought what a great compromise! But he still wants to graze all day long like a cow in pasture! So I try to help him eat good food and sometimes fun foods to encourage eating well.

So why is it a big deal for him to eat constantly? It has to do with insulin, whether via shot or pump. Eating more often requires insulin. Each time he takes insulin he is stacking it on the last dose and essentially giving himself mega doses of insulin, setting himself up for a low. Rapid insulin like Novolog or Humalog have about a 3-4 hour active time in the body. The insulin works quickly but does not leave the body quickly. It basically means we can expect many and frequent lows. Eating every two hours helps with this but does not necessarily eliminate stacking of insulin. But for us it works.

Growing and grazing. Eat, beef up and grow taller. Type 1’s can navigate this easily without negative consequences. Go forth and chow down!

Growing and Grazing

Aside Leave a comment June 24, 2015 Stacey

The Barbara Davis Center for Diabetes

What Diabetes Apps Do You Use?

Technology is great! It allows us to keep connected with other people in our lives. For example, It allows my teenager to contact me always. So when he is over at a friends or out with school activities he texts me his blood sugar numbers when they are out of range. So my question is what apps for your smart phones do you use for your type 1 diabetic?

Type 1 Available apps

There are so many apps available for use. Some seem perfect for a type 2 diabetic because they help with meals and weight loss. The few type 1 diabetic apps I have reviewed and looked at are ManageBGL, My care Connect, and Go Meals or Calorie King. ManageBGL website talks about real-time Blood sugars (a sitter/child enters it and it gets to the parents), predictive lows or highs, ans so much more. What a wonderful way for parents to help easy an overnight with others. Then there is My care Connect. This one allows information from school, child, parent to communicate back and for as well as with the endocrinologist. I have not had the chance to use either one but have look at both closely.

Then there is the applications that help you carb count:Calorie King, GO meals. We utilize apps and books. Usually just what we can get our hands on fastest. They have allowed my teenager to feel more comfortable counting carbs.

Pros and Cons

Apps help so much and in so many ways depending on which app you decide to use. Apps need good cell service or wi-fi to get the information live. Don’t get me wrong I utilize every thing I possibly can to help me with my sons diabetes management, but there are times a book or a phone call is easier or more reliable. So a mix of technology and old school paper is good.

Knowing when to tell your child or other adult if the app, phone call or consulting a book, like ours “type 1 Diabetes and Babysitting”, will be the fastest or safest method. We can rely on technology until it does not work then we need to rely on paper. Plus there are things that are tangible like having a flow chart right infornt of you to know management. Let me know which do you prefer: paper or a screen?

Type 1 Diabetic Apps

Aside Leave a comment February 26, 2014 Stacey

Type 1 Diabetes and Friends

1 Comment December 2, 2013 Stacey

Friends can be a tricky thing with your type 1 child. Children want so badly to fit in with others, to have a group of people who accept them unconditionally. Type 1 diabetes can make your child have the impression of being unaccepted. Now not all children feel this way. Many children have a self-confidence that is made of iron and other children determine their confidence based on others. And let’s face it: other kids can be mean and use diabetes as a way to pick on and bully your type 1 child. As parents we want to embrace our children, keep them safe, and have them feel confident no matter what and make all of their ills disappear. If we, as parents, could do that we would wipe out diabetes all together with our wants and desires.

Since we cannot wipe out diabetes, how do we help our children to be comfortable with this lifelong disease? I believe it depends of your child’s age. With a middle, elementary school and younger child, parents need to enter the classroom each year and talk to the class about type 1 diabetes. Joslin has a great handout to guide you as a parent through this at http://www.joslin.org/info/classroom_presentation_on_diabetes_for_elementary_school_age_children.html Beyond talking to the class, you can also enlist the help of the friend’s parents. They will need to know about your child anyways so why not have them help talk to their child about childhood diabetes? The friend’s parent may know how to talk to their child about specific for their child.

Then with an older child, he should start to learn to talk to their friends about Type 1 Diabetes. This will help two-fold. First, it helps your type 1 child learn about their disease a bit more because he or she needs to talk about Type 1. Secondly, I strongly believe that encouraging your child to discuss this makes them more confident about themselves. When a child becomes more confident they are more likely to advocate for themselves. With advocation less childhood bullying could occur. Kids don’t tend to pick on kids that are confident in themselves. Self-advocation is a lifelong habit.

All T1D kids need to eventually be able to discuss how their body works, why they need insulin, to carry sugar, eat often, and sometimes feel cruddy because of their sugars. Teaching your child while they are with you by talking to the classroom and their friend’s parents about type 1 diabetes will enhance your child’s ability to make lifelong habits to talk and discuss about their diabetes.

Brand New Type 1 Diabetic Parent

Leave a comment November 20, 2013 Stacey

I first want to tell you to BREATHE!

Okay now we can talk. There is so much information that is getting told to you and you feel like you are drowning. Breathe again! You will become the next expert on your child and type 1 diabetes. But how do you get there and when will that happen? Take small steps to get there. You will learn all of the information and will be that expert. Parents I have talked too say they really felt very comfortable around a year. Not that you won’t understand what to do until then; however, type 1 diabetes becomes second nature around then.

Not everyone is the same. Some parents are type A organized and have every paper ever given to us by the doctor to reference back too. And some of the parents have what is exactly needed and nothing more. Each has it merits. But what we do have in common is we keep all this stuff in one spot to find and reference. Usually all of the information is from a diabetic educator. Diabetic education is wonderful. They take you step by step through all things diabetes. So how could you break that up a little bit more for a not so structured person. Start with a list of how to focus on aspects of diabetic care. (And yes I am the type A personality, so planning is how I function. I recognize that planning is not everyone’s strength. And it is not a downfall). Start with a few weeks as a new diabetic parent and just get to know your child’s type 1 diabetes. As a parent of a newly diagnosed diabetic I learned my child; for example I learned that his legs were hungry when he was low. While you learn your child also spend time with a basic diabetic book to understand high blood sugars, low blood sugars. insulin, and carbohydrate counting. Then I would start to dive into each topic more in-depth.

A good example would be carbohydrate counting. To do this start to learn more about how to measure and weigh carbohydrates. The package carbohydrate counting is sometimes correct and sometimes way off. So measure with a good old-fashioned scale and use that carbohydrate counting book at diagnoses. If you have that book mark the pages you use most.If you don’t go buy one. If your preschooler will only eat macaroni and cheese then mark all of the pages. (We keep one of these books in a carry bag, in a kitchen draw, at grandmas house, in all the cars. One year we found older versions at the bookstore for a dollar a piece. You guessed it we bought every single one of them). Now that the pages are marked you will find it easier to start counting carbohydrates. Live with the carbohydrate counting and then move on to the next topic of your choice.

Over the next few weeks learn in-depth a certain aspect of the new diagnosis. With breaking it down into smaller steps it becomes easier.taking it step by step allows you to master your understanding of your child’s diabetes. Also remember you are still caring daily for your diabetic child. The first year is the hardest because type 1 diabetes is not second nature. It will come it just takes time. But the thing that is most important to emphasize is a parent can become caught up in trying to do all of the diabetic stuff and burn out easily. So BREATHE often and frequently!

It is important to stay on top of it but you as a parent needs to know when you need a break even for a few hours. You can better help you child with their diabetes if you are not burnt out from care giving. to do this use all the resources you can, books, family, spouse, to make learning and caring easier for you and your family. Diabetes did not just

impact your child, it has changed the whole family unit.

One place to start with a new diagnosis is with our book. It is for babysitters, but as authors we broke the book down in very basic topics to help people learn. The intended people are the sitters, but with a new diagnosed child the parent can also be that person to learn. And the plus side is that you will have all your kiddos information in one area. Diabetes is hard on the whole family and the primary parent tends to be the caregiver. You as a parent will learn it all and hopefully do so with as little stress as possible.

Type 1 Tween

1 Comment November 7, 2013 Stacey

As a parent caring for a child type 1 diabetic you have likely been living day-to-day with blood sugars, carbohydrate counting, insulin, and then adjusting basal rates and insulin to carbohydrate ratios. (of course this is if your child is not a new diagnosed type 1). Then one day you realized you have a tween. You know the 9/10-13 years of age trying to be a bit more independent from you as a parent. Naturally they need to learn independence slowly. In a tweens life Peers become the ruling influence and the tween wants to make more of their own decisions. This is only the beginning as your child grows to adulthood. In a non diabetic life there is so much to consider. Diabetes then adds another layer for parents in raising a child to adulthood.

So how do you as a parent help your Type 1 child to navigate this need for some independence and stay safe with diabetes. As in a non diabetic kids, life and learning and not linear. You give a child room to be independent and then they have a life lesson and have consequences. So how to begin independence and type 1 diabetes? The first thing to do it is to understand where your own child is at with their type 1 diabetes comfort level. Does he or she know how to count carbohydrates and does correctly with insulin? Can he or she give a shot? Are they aware of their blood sugars and able to test? Finally, can you trust your child to do those things and not be caught up in “life”? If you can then begin by trusting them to go to a friend’s house or other youth activities without you.Then do you get a phone or no phone and what age so to promote being able to be more independent, and what age is a phone given? We use a phone because I can parent from afar and my son is able to gain more independence.

I feel any of the above only happens in small steps. What works for one family may not work for another because kids are so different. Each child’s learning can be vastly different, but some basic truths apply to all type 1 children. One such truths is self-care in relation to their diabetes. If this is satisfactory (able to test blood sugars, how to treat the blood sugar, and when to notify you as a parent) then I believe you let your child should be able to be away from the parent and grow gradually. For example we use our book, “Type 1 Diabetes and Babysitting: A Parent’s Toolkit” for my son to know what to do with his sugars. So when we are at a cross-road he looks up the basic steps and we always review it. If my son needs more training we discuss it with his educator.

With slow training, I believe your type 1 child will grow to an independent adult. It is all a learning process for us as parents and for our children. In the end as parents we don’t only have the responsibility to prepare them to be adults but to also teach our Type 1 Diabetics how to manage their disease in a healthy way so they are able to without our help as parents. The tween years can be fun and challenging at the same time. Having a clear plan to guide your type 1 child into adulthood will decrease stress for the whole family at this time in their lives.

Denver JDRF Walk

Leave a comment September 8, 2013 Stacey

Start of the Denver JDRF walk

Well here it is today. Fundraising and meeting tons of new families and people! Getting your name out into the world is hard work! But worth every bit. Things we did note today that I think is important:

1. Hiring any babysitter is scary when your most precious cargo can be seriously hurt! While having a type 1 sitter is easier, simply because the sitter knows the disease, it is not always practical. That is how our book helps! It is designed specifically for your child while helping a non-diabetic understand your child.

2. So many teenagers with type 1 are starting up babysitting! Such a wonderful need! I still think this book is important. Your child is yours and the teenage type 1 kiddo understands the ins and outs, but needs specifics on your very individual special child.

3. Grandparents can utilize this book! I met many today that have taken a grand parenting class but wanted the book for the type 1 in their life.

Dayna at our booth!

We all have our reasons for needing this or not wanting to leave our kids with just anyone. Just anyone can be scary. What if we found someone who is not type 1 but learned how to love and care for our type 1 with ease? Our fear as parents may lessen and life can be a bit more normal!

There are sample pages up on the blog and Amazon lets you look through some of the book. Take a peek.

If you are in the Colorado Front Range we will be at the Colorado Springs Walk at America the Beautiful Park next Saturday and we will be on the local KKTV news September 11 at 9 am. Check us out. If you see us around we do have books on hand for $15.

See everyone next week.

Press Release

Leave a comment September 3, 2013 Stacey

FOR IMMEDIATE RELEASE

9 September 2013 | Colorado Springs, Colorado

Stacey Smith-Bradfield and Dayna Frei

Date Night possible again for parents of children with Type 1 diabetes

TYPE 1 DIABETES AND BABYSITTING: A PARENT’S TOOLKIT

After the diagnosis of a child with Type 1 diabetes, the first weeks, even months, are filled with sleepless nights, insulin shots, blood sugar numbers, and a general feeling of being overwhelmed. From day one, parents are taught to prepare for the worst case scenario: a plummeting blood sugar resulting in seizures or even unconsciousness. Once a family starts to venture out of their safe, structured environment, simple pleasures such as play dates, sleepovers and even an evening out for parents seem like an insurmountable challenge. As fellow parents of children with Type 1 diabetes, Stacey Smith-Bradfield and Dayna Frei have sought to ease the fears and frustrations of leaving children with a sitter, a nanny or even a friend.

“From a medical standpoint, you cannot gloss over the needs of a child with Type 1 diabetes. In writing Type 1 Diabetes and Babysitting: A Parent’s Workbook, we knew we had to cover so many critical topics,” says Smith-Bradfield, an Advanced Practice nurse. Co-author Frei adds, “Not only is this a teaching tool for the parent, but we had to consider caregivers who might not have any knowledge of diabetes.” The workbook walks a parent through teaching sitters about day-to-day care, as well as emergency situations, and includes places to completely tailor the pages to their child’s needs. Additionally, Smith-Bradfield and Frei have added pull-out pages, with sections such as “Dinner and a Movie” and “Sleepovers” leaving the person in charge with the most important and likely needed information.

Julie Marmon, M.D. says, “This book provides parents a method to convey crucial data and not worry that important details have been glossed over. The step-by-step instructions and flow charts with areas to personalize, streamline care and remove fear from a situation which may be scary for sitters and family members. Great work!”

While there are hundreds of books on diabetes, Type 1 Diabetes and Babysitting: A Parent’s Toolkit is the first to simply teach the pertinent information, without overwhelming the teenager or adult caregiver. For more information, please visit www.sciencehorse.com.

TYPE 1 DIABETES AND BABYSITTING: A Parent’s Toolkit

By Stacey Smith-Bradfield and Dayna Frei

Science Horse Productions, LLC

P.O. Box 38879, Colorado Springs, CO 80937

ISBN: 978-0-615-86345-0

Price: $15

CONTACT: email sciencehorseproductions@gmail.com phone 719.237.6631